We are two doctors who work in paediatric neurology and are gathering information on the CDKL5 disorder to understand better the management and associated problems. We would be most grateful if you could spend some time answering these questions. All information from this questionnaire will be completely anonymous and confidential. You are not obliged in any way to take part in this survey. Please leave the question blank if you are not sure about it or if it is not relevant to your child.
Dr Sam Amin & Dr Rebecca Scarchard